Historical Tidbits to Broaden the Conversation

The more time passes, the more we learn about the history and look to the future of a disease well over 150 years in its evolution. read on >

Getting Unstuck – From Resignation to Hope

At a recent gathering of bereaved parents the discussion was about coping. Specifically, how did we each find or develop coping skills to continue our lives after the loss of our child? The question is similar for parents whose children are alive and struggling with this disease – what coping skills are employed to maintain sanity and do these skills change over time? On either side of this same coin, we each must find what works for us. read on >

Moving Forward – Books to Open the Mind

Books that I found helpful to broaden the landscape of my thinking and give me hope. There is no starting or ending place; each of us journey our own path. Happy reading! read on >

Moving Forward – Links to Open the Mind

Web links that I found helpful to broaden the landscape of my thinking and give me hope. There is no starting or ending place; each of us journey our own path. Happy reading! read on >